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S 3097119th CongressIn Committee

Health Information Privacy Reform Act

Introduced: Nov 4, 2025
Sponsor: Sen. Cassidy, Bill [R-LA] (R-Louisiana)
Standard Summary
Comprehensive overview in 1-2 paragraphs

The Health Information Privacy Reform Act expands HIPAA-style privacy protections to additional health information not currently covered, establishing new standards for data protection and individual rights.

Key Points

  • 1Extends privacy and security standards to non-HIPAA covered health information
  • 2Establishes individual rights for access, amendment, deletion, and portability
  • 3Requires consent for data sharing and sales by regulated entities
  • 4Mandates de-identification standards and privacy-enhancing technologies
  • 5Prohibits certain uses without authorization and establishes minimum necessary standards
  • 6Requires HHS study on patient compensation for research data sharing

Impact Areas

Health information privacy and data protectionHealthcare technology and digital health platformsPatient rights and data ownershipHealth research and data sharing practicesFederal health regulation and enforcementCybersecurity and data breach prevention
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