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S 721119th CongressIntroduced

Sickle Cell Disease Comprehensive Care Act

Introduced: Oct 28, 2025
Standard Summary
Comprehensive overview in 1-2 paragraphs

Establishes a Medicaid demonstration project to provide comprehensive health home services for individuals with sickle cell disease.

Key Points

  • 1Authorizes state plan amendments for sickle cell disease-focused health homes beginning January 1, 2026
  • 2Requires provision of dental and vision services to enrolled individuals
  • 3Mandates quality, access and expenditure reporting after 8 fiscal quarters
  • 4Requires HHS to develop best practices based on clinical guidelines
  • 5Defines eligible individuals with sickle cell disease for Medicaid health home services

Impact Areas

Medicaid programs and beneficiaries with sickle cell diseaseHealthcare providers specializing in sickle cell treatmentStates implementing sickle cell disease health home programsPatient advocacy organizations for sickle cell disease
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