A resolution designating September 25, 2025, as "National Ataxia Awareness Day", and raising awareness of ataxia, ataxia research, and the search for a cure.
This is a non-binding Senate resolution designating September 25, 2025, as National Ataxia Awareness Day. It highlights ataxia as a broad group of rare, inherited neurodegenerative conditions that affect coordination and movement (including types such as ataxia telangiectasia, episodic ataxia, Friedreich’s ataxia, and spinocerebellar ataxia). The resolution emphasizes the need for greater public awareness, improved diagnosis and access to care, and accelerated research toward safe treatments and, ultimately, a cure. It also recognizes the challenges faced by individuals with ataxia and their families and urges states and localities to support the goals of the awareness day. As a resolution, it is primarily symbolic and does not create new laws or funding.
Key Points
- 1Designates September 25, 2025, as “National Ataxia Awareness Day.”
- 2Explains that ataxia is a group of rare, inherited neurodegenerative diseases affecting coordination, precision, and timing of movements, with several specific forms named (e.g., Friedreich’s ataxia, spinocerebellar ataxia).
- 3States goals to raise public and healthcare professional awareness of causes and symptoms, improve diagnosis and access to care, and accelerate research for safe and effective treatments and a cure.
- 4Recognizes the experiences and challenges of individuals with ataxia and their families.
- 5Encourages states, territories, and localities to support the goals of National Ataxia Awareness Day.