Stephanie Tubbs Jones Uterine Fibroid Research and Education Act of 2025
The Stephanie Tubbs Jones Uterine Fibroid Research and Education Act of 2025 aims to address the significant health burden of uterine fibroids through expanded research, improved data collection, and enhanced public education. The bill recognizes that up to 77% of women develop fibroids before menopause, with particularly severe impacts on Black women, who experience earlier onset and more severe symptoms. The legislation authorizes $30 million annually for research through the National Institutes of Health, establishes a Medicaid database to track treatment patterns and costs, and mandates public education campaigns about fibroid awareness and treatment options. The bill responds to the current underfunding of fibroid research relative to disease burden and the estimated $5.9-34.4 billion annual economic impact of fibroids in the United States.
Key Points
- 1Authorizes $30 million annually (fiscal years 2026-2030) for expanded uterine fibroid research through the National Institutes of Health and coordinated federal agencies
- 2Requires establishment or expansion of a research database tracking Medicaid and CHIP coverage of fibroid treatments, with a report to Congress within two years on federal and state expenditures
- 3Mandates development and dissemination of public education materials about fibroid awareness, prevalence, elevated risks for minority populations, and available treatment options beyond hysterectomy
- 4Directs the Secretary of Health and Human Services to work with medical societies and health systems to promote evidence-based care and inform healthcare providers about treatment options
- 5Specifically addresses health disparities, noting that over 80% of Black women develop fibroids compared to 70% of White women, with more severe symptoms and earlier onset