Permanent OPTN Fee Authority Act
The Permanent OPTN Fee Authority Act would give the Secretary of Health and Human Services permanent authority to collect registration fees from each member of the Organ Procurement and Transplantation Network (OPTN) for every transplant candidate that member places on the network’s waiting list. The collected fees would be used solely to support the operation of the OPTN and would be treated as discretionary offsetting collections within the Department. The bill also requires increased transparency, including quarterly public postings of fee amounts and the activities funded, and it requires a new data dashboard showing key OPTN metrics such as total transplants, transplant types, and organ entries and failures. In addition, the bill directs a GAO review within two years to assess these activities and provide recommendations. In practical terms, the bill creates a permanent funding mechanism tied to OPTN membership activity, while enhancing public reporting and data visibility. It also broadens the information technology and communications capabilities of OPTN through a new dashboard and updates to existing services. The funding would be distributed to eligible awardees tied to OPTN operations, subject to appropriations, and the accounts would remain available until expended.
Key Points
- 1Establishes a permanent authority for the Secretary to collect registration fees from OPTN members for each transplant candidate that member places on the waiting list; fees are dedicated to OPTN operations and can remain available until expended.
- 2Fees can be collected directly by the Secretary or through awards made under OPTN grant authorities; collected amounts are treated as discretionary offsetting collections and are available only as provided in appropriations acts for distribution to OPTN awardees.
- 3Requires transparency: the Secretary must promptly post on the OPTN website the amount of registration fees collected from each member and a list of activities those fees support, with updates each calendar quarter.
- 4Creates a new dashboard (and updates to the network’s data reporting) to display metrics such as the number and types of transplants, and the number of organs that entered the OPTN system and were not transplanted, among other statistics; dashboards to be updated more frequently than annually.
- 5Includes a GAO review within 2 years of enactment to assess the implementation and effectiveness of the new fee authority and related activities, with recommendations to specified congressional committees.